Wednesday, February 20, 2013

IL Newsletter, 20th February

  Welcome to this week's Independent Living newsletter. If you prefer, you can read it online, by clicking this link
Contents:
1. Advice on Disability Discrimination
2. Guest Blog: Find Me Good Care
3. Etac UK - Special Function Powerchairs
4. Spinal Injuries Association Survey
5. Dementia Challenge - £150,000 Innovation Prize
6. Nutrition Blogspot, BMI update, and more
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1. Advice on Disability Discrimination
From time to time, we get asked about disability discrimination, and how current equality legislation affects various aspects of life. A particularly interesting enquiry this week came from a newsletter reader who was having problems with planning consent for building an accessible property. I hope to be able to update you on this in a future newsletter, but meanwhile my researches uncovered the fact that there is a new Equality Advisory Support Service, which replaces the EHRC helpline.
EASS is there for individuals from anywhere in Great Britain who need more expert advice and support on discrimination than is available from local organisations. As well as explaining what rights and remedies you have under discrimination legislation, the service can help guide you on informal resolution or mediation to solve a problem; or help you find an accessible legal service, establish whether you are eligible for legal aid, or if not, prepare and lodge a claim on your own account. The EASS can't provide representation in court, or give advice on proceedings once claim has been issued. The service isn't available for the use of solicitors or other professional advisers.
These are the contact numbers: phone 0800 444 205 or textphone 0800 444 206. Their website can be found here
You can read more about Equality Legislation in our accessibility area, which you will find here
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2. Guest Blog: Find Me Good Care
There has been a lot of news recently about care funding, particularly for people unfortunate enough to need a lot of support for a long time. It's a subject most of us tend not to think about on a personal level, perhaps in the ostrich-like belief that if we don't, it won't happen to us.
Well, it might. And working on the principle that it is better to be informed and prepared, we have an interesting guest blog written by Andrea Sutcliffe, the Chief Executive of SCIE, the Social Care Institute for Excellence, about finding and paying for good care.
Her article includes tips on different ways of covering care costs, and you can read it here
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3. Etac UK - Special Function Powerchairs
I am pleased to be able to tell you about a new page on Independent Living, showcasing the sophisticated range of power chairs available from Etac UK. Etac has been a world-leading Scandinavian healthcare specialist for over three decades, and the UK division provides assistive aids that go well beyond basic mobility. Their range includes chairs designed for both adults and children, and there are models which allow you to move from lying or sitting to standing, at the touch of a button. On smooth ground, you can travel standing up, as well.
Etac UK is also developing a range of accessories to go with their power chairs, starting a nifty new bag which can be carried on the back, armrest or footrest of the chair, or transported independently, using its shoulder strap. You can see more here
And this is a link to our powered mobility section
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4. Spinal Injuries Association Survey
A final reminder that the Spinal Injuries Association is looking for your input in developing its Strategic Plan for the next three years. They are asking for your views on their proposed areas of work, which have been distilled into six Focus Areas:
1. Support Services for people with spinal-cord injury;
2. Education, training and technological innovation;
3 Campaigning;
4 Fundraising and Business Development;
5 Extending reach to support non-traumatic SCI people;
6 Governance
You can complete their questionnaire, either as a member, SCI non-member, family member, fundraiser, corporate supporter, healthcare professional, legal or other professional adviser, or as an interested individual. Make it anonymous if you like, but if you give contact details, you will be entered in a draw to win a Kindle Fire (this Prize Draw is not open to SIA staff, volunteers or Trustees). Here's the link, and the closing date is the end of this month, 28 February.
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5. Dementia Challenge - £150,000 Innovation Prize
Dementia is one of the greatest health challenges facing us today - some 800,000 people are currently living with dementia in the UK, with an estimated 670,000 family and friends acting as primary carers. Already, an estimated £23 billion is spent annually on health services, and this is predicted to increase by £5 billion over the next five years.
The NHS and Janssen Healthcare Innovation have launched the inaugural NHS Innovation Challenge Prize for Dementia, with the aim of encouraging new approaches to dementia care. Anyone with direct experience can contribute their ideas on what the scope of the Challenge should be, on the Challenge Prize for Dementia website. They are looking for your thoughts, in no more than 250 words, on the following question: What, in your view, is the biggest single challenge facing Dementia, and/or the provision of Dementia services, at the moment and what outcome would you like to see achieved?
The deadline for this is 20th March, and when the terms of the Challenge have been finalised, innovative ideas and solutions can be submitted for consideration for a prize of up to £150,000, provided by Janssen Healthcare Innovation.
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6. Nutrition Blogspot, BMI update, and more
I'm not sure whether I should tell you that it's National Chip Week, at the same time as mentioning Mary Farmer's latest Nutrition Blogspot, which is looking at a dieting strategy that has suddenly become popular, the 5:2 or Fast Diet! But perhaps chips are okay on a diet that allows you to eat more or less what you want for five days, in return for two days of really restricted food... Read more here
Continuing the theme, our bariatric area has just been updated with the latest information on calculating BMI... find out whether you are a winner or loser!
Don't forget you can access all the news as soon as it is uploaded in our News Centre.
Previous newsletters are archived here.
Our Facebook page is regularly updated with the latest developments on the site, and is also somewhere that you can share your opinions with us. Or if you want to make it pithy, send us a tweet! @IndLiving
Until next time, all good wishes,
Frances
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Frances Leckie
Editor
E: editor@independentliving.co.uk
t: +44 (0) 208 133 0628
Skype: francesleckie
w: http://www.independentliving.co.uk


































disability arts online - newsletter

  

Disability Arts Online

Listings newsletter

Welcome to the DAO e-bulletin

DAO is a unique journal for discussion of arts and culture - edited by disabled artist, Colin Hambrook.


Tension is mounting here as we build up presenting the new design of DAO. We thought we were there at the beginning of the week, but we're still ironing out browser issues.
Six Deaf Explorers embark on journeys to support arts development and cultural exchange in a project being steered by the Deaf Cultural Centre in Birmingham
I am delighted to announce news that Shape has received initial support for a £962,000 bid from the Heritage Lottery Fund (HLF) for the National Disability Arts Collection and Archive.
Paul F Cockburn reviews Bird of Paradise Theatre's latest production In An Alien Landscape
Gini gets ready to exhibit her DAO commission for Creative in Con.Text based at Salisbury Arts Centre
DAO is offering disabled writers an opportunity to apply for a bursary to attend an interview writing workshop and a symposium at Salisbury Arts Centre
To post details of events, opportunities or jobs you would like to advertise through DAOs free listings service, please use the online form at www.disabilityartsonline.org.uk/Send_us_your_listings

National events listings:

Leave Home Stay - Gone Exhibition in Kent

21/02/2013 - 24/02/2013
Leave Home Stay - Gone is a collaboration between two photographers, Harold Chapman, who documented the transient life at the Beat Hotel, Paris, in the 1950s, and Christine Finn, a journalist and artist, whose investigation of the meaning of 'home' links

InMind at the Royal Academy, London

25/02/2013
A coffee and conversation session with works from the RA collection for people experiencing dementia and their family, companions and carers.

Disability Arts Cymru celebrate their 30th year at Chapter Arts Centre, Cardiff

27/02/2013
Join DAC for an evening of celebration including 'Remote Exit' - a new play by Meredydd Barker, performed by members of the Unusual Stage School

Free audio described event at the Geffrye Museum, London

27/02/2013
The Victorian and Edwardian Drawing Room. Discover the fascinating differences between the Victorian and Edwardian drawing rooms at The Geffrye, museum of the home - through audio description, object handling, sounds and smells.

Sessions for blind and partially sighted visitors at the Geffrye Museum, London

28/02/2013
Celebrations in the Home: Explore how different celebrations have been marked in the home from birthdays to street parties and bake tasty treats.

National jobs listings:

Stopgap Dance Company seek Dance Development Manager

Location: Farnham, Surrey | Closing date: 22 February 2013
Remuneration: £21,000 ‐ £25,000 pro rata per annum depending on experience
Stopgap Dance Company seeks to appoint a Dance Development Manager to oversee, manage and support Stopgap’s prolific programme of inclusive dance outreach work

Heart n Soul seek Project Access Officer

Location: Deptford, London | Closing date: 25 February 2013
Remuneration: Daily rate of £100 - £125 per/day (depending on experience)
Award winning creative arts company Heart n Soul is looking to recruit a: Project Access Officer (96 days over 12 months)

Web Developer sought by Full Circle Arts

Location: Manchester | Closing date: 28 February 2013
Remuneration: £10,000 per annum
Full Circle Arts is looking for an experienced WordPress backend developer (PHP/MYSQL) to join our small and tight-knit team.

Media Manager sought by Edinburgh Festival Fringe Society

| Closing date: 8 March 2013
A dynamic and experienced individual is needed for the position of Media Manager (temporary) for The Edinburgh Festival Fringe

Media Officer (temporary) sought by Edinburgh Festival Fringe Society

| Closing date: 8 March 2013
A dynamic and experienced individual is needed for the position of Media Officer (temporary) for The Edinburgh Festival Fringe

National opportunity and workshop listings:

RASP to host Writing Workshops for dyslexic authors at the University of Roehampton

18/02/2013 - 20/03/2013
We’d like to create a space in which dyslexic writers can develop their writing skills, meet, talk, exchange ideas, work on scripts, technique, think and network.

Unscene Suffolk: A Theatre Project for Visually Impaired People in Ipswich

04/02/2013 - 08/04/2013
Produced and led by Jenni Halton in collaboration with the New Wolsey Theatre, Unscene Suffolk are looking for visually impaired people in Suffolk for a Participatory Theatre Project

THE BRUNTWOOD PRIZE FOR PLAYWRITING 2013 IS NOW OPEN

31/01/2013 - 03/06/2013
The Bruntwood Prize for Playwriting is the UK’s biggest national competition for playwriting. It is the search for great new plays and great writers.

Running a Writing Group Workshop at the Friends Meeting House, Brighton

30/01/2013 - 27/02/2013
Teaches you how to set up, advertise and manage a writing group.

The new Launch Pad programme for 2013 at Zinc, Essex

26/01/2013 - 24/02/2013
The new Launch Pad programme for 2013 is out, and we would love for you to be a part of this unique project.

Blue Badge Offer

 

We at Pie mapping are planning to do a campaign on one of our guides for London for blue badge holders.

The guide is currently 8.59 including p&p and we are willing to give it away free of charge and the customer only pays for the shipping.

This London Guide is an essential for anyone who  has a blue badge because it helps with parking, planning journeys, accessible areas etc.

The voucher code for this offer is MSE13 and can be purchased from the website http://www.parkingforbluebadges.com/shop/bluebadge/bb-london-parking-guide-3rd-ed.html.

We also have the Blue Badge Uk Road Atlas on offer which is the same as the London guide but it covers the whole of the UK.

The voucher code for the Atlas is BBUK13 and can be purchased from the same website.

Looking forward to hearing from you guys.

 

Stevin Jno Baptiste

Customer Services

Image001

t: 020 7952 0452 | f: 020 7952 0451

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Monday, December 31, 2012

Goodbye 2012 ... Hello 2013!

Well I have to say 2013 was horrible, horrible I tell you!

Over 20 stays in hospital and things still aren't right, but at least this year I have learnt a lot about how the NHS works.  And yes, despite all the problems its still a great service, due in no small part to the dedication of the staff.

But what of DD?  I have to be honest and say things slipped and it has been a struggle to keep things going, however as we face a New Year its once again an opportunity for a fresh start, so here we go!

If you have tried to make contact in 2012 and had no success, please try again. But one of the most important changes this year to the site will be the dropping of fees for commercial organisations.  Charities and voluntary organisations were always listed for free on the site and from now on everyone will be free, though of course the usual terms apply so the site or organisation has to be relevant to the sites audience/visitors ...

I also hope to get this bit (The News blog) working regularly too, but I need you help.  Please send me your stories and news that you want to "get out there" - the more quirky or interesting the better.

So lets see how we get on.  Oh yes, Happy new Year!

George, Webmater





Monday, October 1, 2012

Crippen Cartoon... STOP!

5 years on… Looking to the future

  

 
 

Help for Heroes
transparent gif

5 YEARS ON...
LOOKING TO THE FUTURE

transparent gif
Follow us on Facebook transparent gif Follow us on Twitter transparent gif YouTube transparent gif Donate to Help for Heroes

 

Dear Team H4H,

Five years ago, on a Sunday night, General Sir Richard and Lady Pippa Dannatt hosted a small reception at their flat in Kensington Palace. The evening was to launch a new appeal called Help for Heroes and our aim was to raise £5m to help fund an urgently needed swimming pool at Headley Court.
 

Tin Hut, Tidworth
When it came to the moment I had to make a speech to the assembled 'great and good', I nervously read the words straight off my notes, my right leg shaking. Later I had to call into a late night radio chat show and I did so perched on the end of my hotel bed before we went out to find a McDonald's.

No sleep, far too nervous for that, and then off to BBC Breakfast for the 0620 slot. We were so bad they bumped us off the 0815 we had been promised but we rallied on News 24 and then we got into the swing of it. Twenty seven TV and radio interviews later, including the key one at a Headley Court, we arrived back at The Tin Hut to find our team gallantly trying to keep up with the phone calls. Help for Heroes was launched and had taken off like a rocket.

Opening of Headley Court Five years later, nearly £150m raised, we have achieved so much more than a swimming pool, although the H4H Rehabilitation Complex at Headley Court is wonderful. We are creating a comprehensive and holistic support programme, based on our Recovery Centres, that will inspire, enable and support our wounded and their families for life.

We have helped hundreds of injured young men and women prepare for the next stage of their lives and we are working hard to ensure that support will be there for the long term. At some stage we will see the casualty levels fall but we must be there to help those who will be still be fighting their battles long after the war ends.

We are not planning any big celebration to mark our fifth anniversary. We will keep that for next year when we will see all the Recovery Centres fully operational; that will be a cause for some proper celebration.
 
We may not be celebrating today but we should be immensely proud of what we have achieved in the last five years. It has been a huge privilege to work with such a wonderful group of passionate, dedicated, generous and energetic people; thank you all.

We have a great challenge ahead of us if we are truly to provide the level of real support that we want to, that we must, provide, This needs to endure so that those who are injured in the service of our country know they really will receive the best support; so we can't stop now.

Thank you all for what you are doing, you are making a difference and you are appreciated; I for one, am immensely proud of you all. Thanks Team H4H!

Keep going, keep doing your best and do so knowing that it is needed.

Scott Meenagh with Chelsea Pensioners
Onwards and Upwards!

Thanks

Bryn and Emma



Posted via email from Editor's posterous

5 years on… Looking to the future

    

Help for Heroes
transparent gif

5 YEARS ON...
LOOKING TO THE FUTURE

transparent gif
Follow us on Facebook transparent gif Follow us on Twitter transparent gif YouTube transparent gif Donate to Help for Heroes

 

Dear Team H4H,

Five years ago, on a Sunday night, General Sir Richard and Lady Pippa Dannatt hosted a small reception at their flat in Kensington Palace. The evening was to launch a new appeal called Help for Heroes and our aim was to raise £5m to help fund an urgently needed swimming pool at Headley Court.
 

Tin Hut, Tidworth
When it came to the moment I had to make a speech to the assembled 'great and good', I nervously read the words straight off my notes, my right leg shaking. Later I had to call into a late night radio chat show and I did so perched on the end of my hotel bed before we went out to find a McDonald's.

No sleep, far too nervous for that, and then off to BBC Breakfast for the 0620 slot. We were so bad they bumped us off the 0815 we had been promised but we rallied on News 24 and then we got into the swing of it. Twenty seven TV and radio interviews later, including the key one at a Headley Court, we arrived back at The Tin Hut to find our team gallantly trying to keep up with the phone calls. Help for Heroes was launched and had taken off like a rocket.

Opening of Headley Court Five years later, nearly £150m raised, we have achieved so much more than a swimming pool, although the H4H Rehabilitation Complex at Headley Court is wonderful. We are creating a comprehensive and holistic support programme, based on our Recovery Centres, that will inspire, enable and support our wounded and their families for life.

We have helped hundreds of injured young men and women prepare for the next stage of their lives and we are working hard to ensure that support will be there for the long term. At some stage we will see the casualty levels fall but we must be there to help those who will be still be fighting their battles long after the war ends.

We are not planning any big celebration to mark our fifth anniversary. We will keep that for next year when we will see all the Recovery Centres fully operational; that will be a cause for some proper celebration.
 
We may not be celebrating today but we should be immensely proud of what we have achieved in the last five years. It has been a huge privilege to work with such a wonderful group of passionate, dedicated, generous and energetic people; thank you all.

We have a great challenge ahead of us if we are truly to provide the level of real support that we want to, that we must, provide, This needs to endure so that those who are injured in the service of our country know they really will receive the best support; so we can't stop now.

Thank you all for what you are doing, you are making a difference and you are appreciated; I for one, am immensely proud of you all. Thanks Team H4H!

Keep going, keep doing your best and do so knowing that it is needed.

Scott Meenagh with Chelsea Pensioners
Onwards and Upwards!

Thanks

Bryn and Emma



Posted via email from Editor's posterous

New Carers Support Service for Somerset

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Press release – 1st October 2012

 

New Carers Support Service for Somerset

 

Somerset County Council has contracted with Compass Disability Services a Somerset based User Led Organisation to deliver a County wide support service for Carers, the new service will be known as Compass Carers.

 

The overall aim of the service will be to support Carers, recognising the value and contribution they make to society offering individual support to enable them to maintain their caring role whilst having a life outside of caring.

 

This will be a brand new service in Somerset and Compass Disability Services will start establishing the service from the 1st October 2012. The official launch of the service will be the 4th February 2013 where all of the service will be in place.

 

Leading up to the 4th February 2013 Compass Carer's will start to introduce elements of the service which are highlighted below.

 

Twenty seven staff have been, or are in the process of being, recruited to undertake roles and deliver this service.

 

The service will be promoted by a team of nine Carers Link Workers led by the Awareness Coordinator, who will work in conjunction with the Carers' Champions in GP surgeries, the health and social care sector and a range of other organisations to publicise the help and support available for carers through Compass Carers.

 

Once people are identified as Carers it will be essential to ensure that a broad variety of information, detailing the support they can access through Compass Carers, is available for them in a range of accessible formats. It will be the responsibility of the Information and Evaluation Coordinator working with an Information and Evaluation Apprentice to ensure that this information is available.

 

There will be six Carers Support Workers who will work with Carers to help them recognise their needs and the outcomes they want to achieve in their life and will provide a method for them to access this support. Full public access to Carers Support Workers will be from the 4th February 2013. Carers Support Workers will also have the responsibility of referring carers who need an assessment through to Adult Social Care.

 

A  Volunteer Coordinator has been engaged to develop positive relations with existing volunteer support agencies throughout the County in order to recruit and manage volunteers who will offer a network of support for Carers.

 

A Training Coordinator will work with existing training providers and will introduce a new series of training courses during Spring and Summer 2013.

 

To ensure that the service is developed with the needs of Carers being paramount, four Carers Voice workers will attend Carers' Support Group meetings and other venues where carers may be present to gain a detailed understanding of the issues, wants and needs that affect them.

 

In addition to this, in line with Compass Disability Services' commitment to ensuring that its services are based on the needs of its users. We are in the process of recruiting a Steering Group of eleven Carers who will work in conjunction with senior members of the Compass Carers Project Team to guide the implementation and delivery of this new service and ensure it evolves to reflect carers' needs.

 

As the project develops to its launch on the 4th February 2013 please check in at www.compasscarers.org.uk to find out how things are developing and events that we may be attending.

 

Ends

 

 

FOR further information, please contact Clive Rymer (Media Officer) on 01823 282823 or email clive@compassdisability.org.uk

 

 

NOTES FOR EDITORS.

 

Compass Disability Services is an innovative, enlightened and positive organisation. Its mission is "to enable disabled people to have equality of opportunity".

 

Compass Disability Services is a user led organisation and its Board of Trustees, which is elected by users, is comprised of at least 80% disabled people. It has adopted the Social Model of Disability as a way of working to remove barriers which exclude disabled people from equality of opportunity.

 

Compass Disability Services' values and beliefs:

• To promote independence, choice and control

• To support equality of opportunity for all people

• To operate within and promote the Social Model of Disability

• To empower and enable disabled people

• To promote equal access and inclusion to all services and facilities

• To adopt a partnership working approach

• It is a non-campaigning organisation.

 

Compass Disability Services works through consultation, representation and service provision to fulfill its mission. We work in partnership with local government, the Health Service, Social Services, other voluntary sector and charitable organisations and anyone else who can benefit from its knowledge and expertise.

 

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Your newsletter - October 2012

 
Newsletter October 2012

Welcome to our newsletter

As many of you know, we've been undertaking all kinds of activities this year to celebrate the NAS's 50th birthday. One of the things we've been doing is strengthening support for our work in Parliament.  

MPs can really help to make things better for people with autism, both locally and nationally, so we're encouraging them to become friends of the NAS, to speak up for autism in Parliament, and to get involved in our campaigns and other initiatives.

Below, we hear from NAS supporter Victoria about her local campaigning work, and the commitment and interest her MP has shown. We'd like all MPs to help us by taking action in their constituencies or in Parliament, so we've set up a dedicated website. Do encourage your MP to get involved by sending them the link.

If you'd like to get more involved yourself, take part in our important disability hate crime survey: it's a difficult and sensitive topic but we would very much like to hear your views.

With my best wishes as always,

Jane Asher signature
Jane Asher
President, The National Autistic Society

News
Victoria Thompson and other attendees of autism summit

Real stories: NAS campaigner Victoria Thompson

This summer, NAS campaigner Victoria Thompson attended a local autism summit to raise her concerns about education provision for children and young people with autism. Read Victoria's story.



Westminster

Become one of our friends in Parliament

Our friends in Parliament play a key role in helping us improve the lives of people with autism. The Autism Act 2009 made a huge impact - but people still struggle to access support, and there is more that we can do. Read more.



Image of a person using a computer mouse

Take part in our hate crime survey

We are conducting research into the bullying and abuse experienced by people with autism and Asperger syndrome because of their disability. If you have experienced this (or a person that you care for has), we encourage you to fill in our online survey. Read more.



Autism Professionals Awards logo

Nominations now open for the Autism Professionals Awards

The Autism Professionals Awards have been created to recognise and reward services and professionals who are making a real difference to the lives of people with autism in the UK. Is there a professional who you would like to nominate? Visit the Awards website.



Photo of a woman

Your experiences of health service provision

The charity Autistica is running two surveys for adults with autism and parents. The first is about people's experience of living with autism and of health service provision in the UK. The second asks where you would like Autistica to focus its research. Read more.


Making a difference for 50 years

Stay in touch with The National Autistic Society: follow us on Twitter, watch us on YouTube or join our Facebook group.  

The National Autistic Society, registered office: 393 City Road, London, EC1V 1NG, United Kingdom.
Tel: +44 (0)20 7833 2299, Fax: +44 (0)20 7833 9666, Email: nas@nas.org.uk
VAT registration number: 653370050; a charity registered in England and Wales (269425) and in Scotland (SC039427)
Copyright The National Autistic Society 2012

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